EDUCATION AND RESEARCH
NOTE: The listings in this section offer information on a wide variety of conditions and diseases. Take some time to browse and search for information on those topics that apply to your situation.
Arthritis Center – John Hopkins University Click the Disease button for information on the different types of Arthritis. Check out the Patient Corner button for information on drugs used to treat arthritis. The same page will give you access to Rheum TV, a large collection of videos on all types of Rheumatological disease.
Cleveland Clinic Noted for cardiology, heart, and vascular surgery. 40 locations throughout Northeastern Ohio, Florida and Nevada.
Cleveland Clinic Lou Ruvo Center for Brain Health Located in Ohio and Nevada where clinicians and researchers focus specifically on Nuerological conditions, including FTD List of other specialities can be found here. https://my.clevelandclinic.org/departments
Houston Methodist Hospital has a reputation for outstanding care, treatments and research attracts patients from Texas, the nation and around the world. Known for spearheading breakthroughs in organ transplantation, orthopedics, cancer treatment and neurology and neuroscience.
Nantz National Alzheimers Center is located at Houston Methodist Hospital There are clinicians and researchers focused specifically on FTD. Many other diseases and conditions are treated here, just search for the specialty that you need.
Legal Information Institute An independently-funded project of the Cornell Law School, Ithaca, New York. From the website: We are a small not-for-profit group that believes everyone should be able to read and understand the laws that govern them, without cost. We value accuracy and objectivity. We carry out this vision by: Publishing law online, for free, and creating materials that help people understand law. Start with the “Legal Section” found in the topics bar at the top, then enter your search. Example: “Medicare Residents Rights” in the search bar returns all the information on patient rights in different types of facilities, long term care and variations in different states, ways communication must take place, and everything else to do with living in a care home. If you have specific legal questions, this provides powerful resources and answers.
Massachusetts General Hospital Teaching hospital of Harvard. One of America’s top hospitals and is the only U.S. hospital to be ranked in all medical specialties. Mass General conducts the largest hospital-based research program in the United States. Specific disease and conditions can be found listed here. https://www.massgeneral.org/about/browse-centers-and-departments. Provides support to caregivers with several programs found here. https://dementiacarecollaborative.org/programs. Clinicians and researchers focused specifically on FTD can be found here.
Mayo Clinic Check out the “Health Library” for information on specific diseases and conditions, symptom checker, and what specific tests involve. A “find a doctor” button is at the bottom, as well as a subscribe button for various newsletters. Clinicians and researchers focused specifically on FTD at the MN, Fl and AZ locations.
Mount Sinai ”Encompassing the Icahn School of Medicine at Mount Sinai and eight hospital campuses in the New York metropolitan area, Mount Sinai is internationally acclaimed for its excellence in research, patient care, and education across a range of specialties.” On the home page, click on “Find a doctor” to see all the specialties available in their health system Or scroll down and to find a spot to enter your information for a more targeted search. You can also find research areas and available clinical trials.
Northwestern University Feinberg School of Medicine “We are driven by our mission to transform the practice of medicine and profoundly impact human health beyond the individual patient.” Click on “Services and Conditions” and scroll to the “a-z” section for information. “Resources” has information and videos on a wide variety of topics, from blood pressure to nutrition to stopping smoking. “Clinical Research” has information on ongoing clinical trial. Clinicians and researchers focused specifically on FTD can be found here.
Northwestern Medicine Mesulam Center for Cognitve Neurology and Alzheimer’s Disease “we work to investigate the causes and clinical characteristics of neurodegenerative diseases, ensure that our patients are the beneficiaries of the latest advances and explore the neural foundations of behavior and cognition in health and disease”. Information on all forms of dementia. You can sign up for studies on topics related to aging, including Super Aging. Provides care and support. Also accepts brain donations.
University of Alabama, Birmingham ”UAB is an internationally renowned research university and academic medical center. ” This linked page has articles on the different areas of research, including cardiology, nuerology, Type 1 diabetes, colorectal cancers, Alzheimer’s and more. And a link to their school’s athletic page ☺ Noted for stroke care and Type 2 Diabetes programs. “
University of Southern California San Francisco Memory and Education Center UCSF Health is an academic health center with innovative treatments, advanced technology and pioneering research. Click on “Conditions” on the home page for information on a specific disease or condition. Noted especially for neurology and neurosurgery, the UCSF Memory and Aging Center https://memory.ucsf.edu/ specializes in research and diagnosis of all dementias. It is one of the few places in the country that addresses frontotemporal dementia, including how to diagnose FTD, as well as medications to minimize symptoms. Medications react differently for the different types of dementia as mentioned on this page: https://memory.ucsf.edu/treatments-stays/medications-dementia I have used this particular page multiple times and successfully cited this page when advocating for my husband with FTD. This site is invaluable for anyone dealing with dementia, five stars!!!
University of Colorado Anschutz Medical Campus At the forefront of transformative education, science, medicine and healthcare. Click on “Research” at the top of the page to find clinical studies and information on how to participate. Other centers and institutes for treatment and research, including those for Alzheimer’s disease, childhood diabetes, mental health, women’s health, aging, stem cell biology, multiple sclerosis and cancer, are found here: https://www.cuanschutz.edu/patient-care
